Maternal Dementia

Does it sound harsh to say that the moment when I felt most alive – this last year – was when my mother was about to die?

Maybe it was the contrast, life and death standing side-by-side. I’m sure that framed it. But that is not why.

During the weeks leading up to her death, I was home alone with her and very focused on the care she needed. Aside from a few moments to myself, to exercise, bathe or make a quick stop at the public library to go on-line, my days were focused on her. I helped her move around. I helped her get dressed. I made soup. I scratched her back. I answered her email. I wrote, as she dictated to me, two letters that she had wanted to write for weeks but hadn’t gotten to. I held her hand. I administered morphine, kept track of all her medications, noting the dosage, the time, the reaction. I told her stories about Short-pants and Buddy-roo.
I changed the channel. I rubbed her feet. I watched her sleep. I witnessed the end of her life. She did not have to do it alone. I accompanied her.

It’s remarkable, the singularity of purpose that comes at a time like this, when there is no question about what is priority and what is ancillary. There was no “should I do this or should I do that?” The day became a series of small moments of service. There were no distractions, no getting pulled off course because of a pretend client crisis or a drama at school. I was fully present.

When you are present like this, it is impossible not to feel alive.

I can think of other moments in my life, moments when I was present, not pulled into a future aspiration or tugged into nostalgia or remorse. The result, always: aliveness, palatable joy, delight and gratitude for my place on earth. This moment I write of, last year, rivaled those moments in its intensity and emotional alertness. The primary emotion was not joy or glee, but grief. Grief and sorrow.

But if you can step out of the judgment that insists alive must mean happy, then you can see that alive really means feeling. Feeling fully any and every emotion that washes over you and accepting it. Relinquishing control and living it and living through it, thoroughly. That is the alive moment.

Something I find curious this moment (it is not that exact moment she left us, by the way, but a moment at her bedside a few days before) is that my mother was severely hearing impaired, and the details I hold on to are almost all auditory. Silence except for a few distinct sounds: the ticking of the clock on the shelf; the furnace kicking in and vibrating the entire house, even the glassware in the cupboard; the snow-plow scraping the road as it passed in front of our house; the wind-chimes on the back porch, hanging amongst her sheets. The sound of her uneasy breathing. The sound of mine after a deep breath, taken when I realized my breathing had grown shallow. “Breathe,” I said out loud, to myself, not to her.

I knew my mother was readying herself to be no longer among the alive. I held her hand and in my heart, I could feel it hurt. It hurt so much, it hurt like my heart was being carved out of my chest with a sharp knife. I was present, all right, with the feeling, with the hurt. In pain, yes, but as alive as I’ve ever been.

I’m participating in Reverb10, and this post is in response to a prompt from author Ali Edwards: Moment. Pick one moment during which you felt most alive this year. Describe it in vivid detail.