Maternal Dementia

We climbed the four flights of stairs to the olive green door of our apartment. Short-pants was ahead of me. She stopped at the landing, just before the door, and turned toward me. “Grammy’s happy now,” she said, “It’s just the rest of us who are sad, the ones left behind.” The edge of her mouth spread into a wide-open smile, her oversized chalky teeth in full view. She beamed awkward and proud at once, fully aware that she could console me with her wisdom. Where does she come up with these things? As if she could read my mind, she went on, “I read that in my Molly McIntire book, but it makes sense.”

Funny what our mourning minds construct to soften the blow of our loss. She’s happy now, we say. Is she? Happy lying in a polished box under the frozen soil? My mother, a card-carrying member of Republicans for Choice, now buried a mere stone’s throw away from a newly placed memorial that I’d never seen before, a marker engraved with prayers for the lives of unborn children “in hopes that our nation will stop the abortion that kills them.” Is she happy about that?

She’s with Daddy now. Is she? Although my last post was engineered around this idea, I have no evidence to prove it. He’s been dead for 23 years. Did he wait for her in some celestial green room with a monitor, watching the rest of her life before she came to join him? What if he reincarnated? What if right now he’s some pimply teenager fumbling his way to second base in his parents’ suburban basement?

I suppose this is would be the anger that Elisabeth Kübler-Ross referred to in her five stages of grief. Anger being the stage that follows denial, which is what I guess I was doing for the last year because my mother didn’t look or act like somebody with a terminal illness. My anger rises from the dust and residue of all the clichéd things we say about a good death, and how she didn’t suffer and how her family was with her, and she died on her own terms.

They weren’t my terms.

I wanted to be able to ask her advice about how to manage my girls when they are rotten and unruly teenagers. She had some experience in this domain, having survived my adolescence. I wanted my mother to watch my daughters grow into young women, to see them graduate from college. I wanted her to be around. I wasn’t done yet.

I keep wondering what do I have to do to wake up and be in a different reality where she’s still with us. Is that bargaining? Check the box for the Kübler-Ross’s third stage, too.

Right away, Buddy-roo noticed the ring on my right-hand ring-finger, a narrow gold band with two rectangular blue amethysts set with two miniature diamonds. I told her how my mother bought the ring from a jeweler in the Russian market in Phnom Penh. My sister was living in Southeast Asia at the time – hard to believe it was 10 years ago – and organized for us a Christmas trip to Thailand, Cambodia and Vietnam. It was a trip filled with indelible images: two sisters sunbathing on an island beach on Koh Samui; my mother, tired and proud after climbing the steep and treacherous stairs to the very top tower of the Temple of Angkor Wat; we three lined up in a row, each in our own single-seated cyclo, complete with toothless drivers and the backdrop of Hanoi’s chaotic traffic.

The jeweler – his name was Sarat, my sister’s most favored vendor in the market – was charmed by my mother, like everyone we introduced her to.
He spent nearly an hour showing her all the rings he’d designed, telling her about his gems and precious stones and where he found them in Cambodia. I remember how, after my mother went to bed, my sister and I would sit at the hotel bar and shake our heads. Everyone was always so enamored with mom. If they only knew what we knew, we’d mutter to each other, knowing that what we knew was a daughter’s privilege, and that despite all her motherly flaws, we, too, admired her fiercely.

Buddy-roo wanted to try on the ring. I twisted it off my finger and handed it over. She held the band, turning it back and forth to make the stones sparkle under the light. It was too large for her ring finger, even too big as she pulled it down over her thumb. “Can I have it someday?” she asked. “Sure,” I told her, “someday you can have it all.”

I’m haunted by that someday, that future moment when I will leave Short-pants and Buddy-roo to their grief, when they will rifle through my earliest love letters to
De-facto, making fun of my copiously worded and disclaimer-ridden proclamations of affection, or when they read the letters in that shoe-box that I should probably destroy now while I can, the syrupy ones I wrote to my parents when I was an introspective, awe-struck student seeing Europe for the first time. Or when they go to write my obituary and realize that I used to be somebody, somebody who was a competent professional before becoming their quirky, forgetful, imperfect mother.

As I begin to sort through the relics that belonged to my mother, I see her anew. I study her photographs a different way. A college friend of hers writes a note about some mischief they stirred up on campus; I am surprised to think of my mother involved in such antics. Now comes a new view, I suppose, to see her as someone beyond my mother, to frame her in larger context, as a woman coming of age and living a range of life experiences. A regular person – just like me.

It makes me look at the girls and think this: by the time you can possibly understand who I really am, it will probably be too late to know me. Then you, too, will know this hollow, cheated, bereaved anger.

This isn’t a pretty post. It’s agitated and discomforting. It doesn’t resolve and tie up in a pithy bow at the end. You were a bit too whiney in that one, someone will say, after reading it. Why, I wonder, when a woman speaks the truth about anger or frustration, this is called whining. Were I man, I’d be allowed to punch holes in the plaster wall. Which is what my words are meant to do right now, because I have been on an airplane all night and I am tired and honest and angry that my mother has been taken from us.

Everything else I’ve written about her death has been well-behaved. Why can’t the poignant be joined by the raw and unrefined? I want to write it as it is: real, rough, full-bodied grief, something that’s messy, mad and just a little bit selfish, something that will be diluted if there are too many drafts and edits, something that’s ugly and maybe hard to read. Something that screams at me to just press publish.

Her entire mouth was blue. Lips, chin, cheeks, and tongue – all blue. The initial shock (Is it blood? What is it?) was replaced too quickly with anger when I realized what it was. Ink. It’s always ink. Why her school insists the kids use a stylo plume is beyond me. It’s not easy to write with – especially if you’re a lefty, like Short-pants. It makes a huge mess on the paper and covers her hands with ink every time she does her homework. But it is required.

I looked down at the floor. The beige carpet, selected for neutrality and alleged durability, colored with huge blotches of blue. There were blue stains everywhere, on her bed sheets, on the comforter cover. The final punctuation on the wall: a perfect handprint, in indigo.

I’d like to tell you I laughed out loud and took her over to the mirror and showed her how silly she looked, like a creature from an Avatar tribe. I’d like to tell you I calmly asked her about the blue ink covering face and hands and clothes and most of her bedroom floor, inquiring, gathering data, seeking to understand what had happened. I’d even like to tell you I counted to ten, releasing my anger so that if I had to scold her, at least I could do it in a sensible, thoughtful way before asking her to disrobe for an impromptu bath.

But no. It’s a classic parenting scenario. And I blew it.

I yelled at her. Sharp, angry, questions: “What’s on your face? How did it get all over your hands? What were you doing?” And when I saw the blue on the carpet, I started firing ballistic missiles.

She exploded, of course, into tears. Repeating, again and again, I’m sorry, Mama, I’m so sorry. Breathless crying. I didn’t spank or hit her, but I suppose I struck her with the violence of my words. It took an entire bath for her to settle down.

“I hate myself,” I said later, tossing in bed, unable to sleep, “I should know better.” De-facto turned and spooned with me, wrapping his arm around me, pulling me close. “You have a lot on your plate right now,” he said, “don’t add this.”

There’s always a bit of stress when we have a job, but this week put me in a spin. To get the kids fed and dressed – let alone to get myself prepared to get out the door – and scurry them to school and sprint to the metro to make it to the meeting in time was a real grind. I only have to do this once or twice a month. I’m in awe of mothers with regular jobs who handle this every day, week-in-week-out. Three days in a row floored me.

That I am going away for two weeks (or more?) adds fuel to the fire. It’s less about getting ready to go and more about getting ready to be gone. Lots of little details: paying bills, organizing child-care, anticipating school assignments, leaving little notes for De-facto. The unspoken stress about the trip ahead, well, that just gets folded and packed in the suitcase with the rest of my clothes – all of which really could use an ironing out but I’ll deal with that – with all of it – when I get there.

I’m too often stretched to the max like this, squeezing in to the short days all the things that must be done so that when 4:30 rolls around, honestly, I’m not ready for them to be out of school. I want a few more hours of solitude. I’m not ready to scramble off and get one and take her here and go back to get the other and take her there and have you done your homework or please finish your dinner or get in the bath or brush your teeth. It’s not like they just take orders and say “yes, ma’am.” There is a fantastic production of lollygagging and goldbricking and stretching out of tasks on their part. I may need to move the night along chop-chop – so I can finish that project or prepare for tomorrow’s meeting or write the post that’s been seeding in my brain all day, or hell, just have a few minutes to sit quietly, read, watch a movie, or simply collapse into bed – but that doesn’t mean they will comply.

It’s not that they are so terribly misbehaved. They are doing exactly what they’re supposed to do! They’re playing. They are marvelously distracted by the present, by the current thought that just crossed their mind or by the toy they just happened to see in front of them on their way up the stairs to do something else, like, for example, that fascinating coloring book – the one with the ink on the pages and a stencil to scratch it off, and wow, look what happens to it when it gets wet. (The source of all that blue, we find, was not the stylo plume, but a high-tech coloring book.)

In order to let them play, I have to juggle what role I want to play.

I did not audition to be a nagging, scolding parent. I idealized a version of me: firm but friendly, rigorous but respectful. Strict but sassy. I usually start out that way: questioning, encouraging, firmly polite rather than barking orders. But sometimes things spiral down. There are those days when I just don’t have the patience, or the feelings are simply too strong, when I hear my own voice shift from being stern and admonishing to just plain hollering. The momentary release brings a very temporary satisfaction, but then it feels worse. And it doesn’t solve the problem the way I’d hope for my girls to learn to solve problems. I’m willing to “talk hard” as we say, but I hate it when I have to yell.

So we sit down to sort it out. I ask questions and listen. I tell them how I feel and what I need. There are tears. Some half-hearted smiles stretching into honest-to-goodness ones. Apologies extended all around. Hugs. Promises. Resolutions.

Then later, when it’s quiet, I go upstairs to check on them, leaning close to sweep the hair off their sleeping foreheads and to plant kisses on their spongy cheeks. Each has her own distinct smell, one like cookie-dough, the other like corn silk. In their slumber, they are oblivious to me and to the world outside their cozy attic bedrooms. They breathe rhythmically – even snoring lightly – sleeping still and sweet and I see how perfect they are, blue fingers and all.

When I was her age, I don’t think I believed in my own opinion anywhere
near as much as she owns hers. At six – not even, she’s still a few weeks shy – she has an abundance of self-esteem. She stands, solidly planted, unquestioning in her dominance. At the park she reigns. She barks out orders and her friends comply without complaint. They seem happy to do her bidding. Nobody messes with Buddy-roo.

Yesterday an argument between sisters came to blows and resulted in two girls in tears. Buddy-roo, frustrated at her sister’s unwillingness to follow orders. Short-pants, annoyed at the repeated, relentless, nagging request that would not accept a polite, or even an impolite, no. It was one of those situations where a brief separation was the best solution.

Buddy-roo sulked beside me in one room, refusing to discuss or debrief the angry encounter with her sister. “I’m not talking to anyone,” she said, “even you.” Sometimes when I’m mad, I just need to be mad, so I understood. I read my book while she curled into a ball beside me. She wanted me close, but quiet, which is just as well because I don’t know what I could have said that wouldn’t have just made things worse. I could equally query one about being relentless and the other about being inflexible. Three sides to every story.

I overheard De-facto in the other room telling Short-pants about his grandmother, how when she was 2-years old – or so the story goes – her grandfather, a man with a friendly Irish name but a gruff Irish disposition admonished her for climbing up a bookcase. Much to the surprise of the rest of her assembled family, all of whom trembled before the overbearing man, she glared back at him over her shoulder from the third shelf and retorted, “You don’t own me.”

De-facto always has a good story, and knows exactly when to share it; this one perfectly timed to strengthen Short-pant’s intended resolve against her bossy little sister.

Short-pants returned and stood in the doorway. “You don’t own me,” she pronounced. Buddy-roo regarded her, unimpressed.

A little while later, I heard the two of them playing together upstairs. They fell into their imaginary world of pet-shops, fairies and princesses, as though nothing had ever come between them.

I have a childhood memory – it can’t be exactly true and yet it resides in my visual recall – of playing with a ball of mercury. Maybe it was in a science class? Or else a thermometer had broken and maybe it was my brother showing me but not letting me touch? I can’t remember, except for an image that is engraved in my mind. The wild silver ball slipping around the ring of a porcelain saucer, the force of its motion breaking it apart into dozens of little balls and then easily fitting itself back together in one seamless piece. How immediately it could fracture. How permanent it looked once re-bonded.

Sometimes my experience of mothering two daughters is like looking in one of those three-paneled mirrors in a department store fitting room. I see myself straight ahead in the center. Flanking me, one on each side, I see the girls, turned slightly toward me, surrounding me, reflecting at me their actions and dramas, reminiscent of some part of me. Oh, there I am, part defiant, stubborn and bossy – as a young child I confidently wrote letters to my teachers pointing out their errors, and there are abundant teenage tales about how I head-ached my parents. Oh, there I am, the sensitive, uncertain one, eager to please – I was always compliant about things like homework and helping with the dishes, and I excelled at making polite conversation while serving hors d’œuvres at my parents’ cocktail parties.

Oh, here we all are.

I suppose it’s natural, but it’s downright creepy sometimes, how these two girls produce this reflection of me. I’m not sure if I want to encourage them heartily or apologize profusely. But I need only turn the other direction to observe my own mother, and to see – stunningly – how much of her they must see reflected in me. How much of her – I finally understand, now that I’m mothering – is now so much part of me.

It’s like we’re all part of that ball of mercury, temporarily split apart but within view and shouting distance, so clearly made of the same shiny silver substance, and yet separated from each other – except in those rare, complex, and rather profound moments when we can all see each other for who we really are.

Just so you know, sometimes she gets mad at him, too.

Somebody always has something to say about how you’re supposed to feel. Once I worked for a man with bad hair, and he accused me of being too sensitive. “How much is sensitive enough?” I asked him. A lover once told me I was too mental, “You can’t think through your life, you have to feel it.” Both of these comments came at about the same time. I didn’t know what to make of it; was I too feeling, or not enough?

When I was pregnant – this seems like ages ago – I was informed by others, often complete strangers, how I ought to feel about becoming a mother. There were, apparently, designated emotions of excitement, anticipation, and joy, and the fact that I felt other feelings like dread, fear and suffocation – not on the condoned list – meant I’d crossed a line, putting the sacred institution of motherhood at risk. “Oh but you must be so excited,” people would correct me, denying me my inalienable right to feel miserable.

So I felt it anyway, just more quietly.

This inspired me, once I hatched small beings into the world, to be very mindful of the casual language we end up using around feelings. “Don’t be sad,” we say unconsciously to a small pouting child. What is that about? Telling a child that the rush of sadness that came over you just now is somehow wrong, you shouldn’t feel it? You have to be one of those happy shiny people all the time?

Not that we should overindulge their sadness or anger. But sometimes, doing a little bit of nothing does the trick. Emotions, like waves, follow their course, crashing on to the shore and receding back into the larger body of water. One wave follows the next, and they just keep coming.

Yesterday Short-pants was angry at me. She made this obvious by putting her feelings in writing and slipping the large note loudly under my door. I didn’t try to talk her out of it. “You are really angry,” I said, like I learned in
a book about how to talk with kids. And just like the book promises, if you wait a beat, the whole story pours out about what she wanted and what Buddy-roo wanted and what I did and didn’t do…the whole crisis is illuminated. The anger, once expressed, begins to dissipate, sometimes merely from the fact of not being denied.

Maybe anger has a half-life, and half of it goes away when you get that it’s just plain okay to feel that way for a little while.

But what about me? What do I do with my pent up I’m-fed-up-with-all-this? How do I get to express my longing? Or my sadness, my fear? Little eyes are always watching. I used to lock myself in the bathroom, just to have a moment alone to process. But little fists learn quickly how to knock incessantly. And besides, why should I shield them from what’s real?

Of course I try to contain the more difficult feelings, but when I can’t keep them in, I simply don’t. I’ve stormed into the girls’ room in a rage, their little faces shocked and their little bodies recoiling from the force of my angry words. I’ve backed up against the wall and let my body slide down it until I’m sitting with my forehead against my knees, heaving tears. About these outbursts I do not apologize; I explain. Later, when the feeling has ebbed, we sit on the stairs and I say something like “Mama was pretty angry, I wish I hadn’t been so loud that I frightened you,” or “Mama was pretty sad, wasn’t I?”

But what if something happens and you don’t feel anything? Like when you’re supposed to feel and you can’t figure out how? Or you’re just, numb? Can they see that too? Which is more damaging to them, I wonder: to witness rage, fear, and sadness or to watch their mother stoically stand at the counter, sponging over the cutting board in a circular motion again and again and again, just to get at the nothing that’s brewing within?